Grief is by far one of the most complex, confusing, frustrating, and painful journeys that a person can ever take.

When you are grieving the loss of a child that complexity takes on a whole new meaning. 


I think about him 95% of the time.  Which is a change from every minute of every day.  I cry often, but not as often as in the beginning.  Big change from all day every day.  I don’t feel quite so guilty about being happy, but it still hard and sometimes the guilt creeps in when I least expect it and throws me for a loop.

Triggers are still everywhere.  The pregnant woman on the bus.  The friend announcing her pregnancy excitedly on Facebook.  New babies in the family that I’m excited about, but sad all in the same breath.  The subtle suggestions that its time to move on, to forget.  But I can’t do that.  I won’t do that.  The way people look at me sometimes when they know I’m sad and thinking about him and there is nothing they can do about it.  He is still everywhere in my life.

But I’m also living again.  I work.  I make it through most days without the tears flowing until I’m safely tucked into bed, if they flow at all.

Life sure isn’t smooth sailing.  Grief consumes me often.  I actually like to cry, its a release.  I crave a moment alone to let the tears fall sometimes.  I need o let it out, lest I should explode or collapse into a million pieces.  But its not as dark as it was even a month ago.  Hell, even a week ago.  Every day I have more good minutes than bad ones.  And sure, sometimes things come out that knock me flat on my ass, but I can get back up now.

This experience is teaching me so much about myself and about my strength.  I don’t need to be unhealthy to cope.  I don’t need to shut everyone and everything out.  I don’t need to do it all on my own.  I can let people in.  I can let people help me.  And I can let people love me.  And they do, a lot.

Where I am in this journey is developing a sense of peace.  It will never be ok.  I will never be ok.  But this new normal is slowly starting to feel less foreign.


 
 
Mothers Day is such a sacred day for so may women.  A celebration of one of a woman's biggest blessings, being a mother. 

But what happens when the baby didn't come home?
Or the baby came home but couldn't stay?
Or the baby never quite made it long enough to be recognized by the outside world?

What happens to those women on Mothers Day? 

Often society feels like if your child was robbed from your arms, you lose your title of mother.  This is particularly true when your loss was early in, during, or shortly after pregnancy. 

What they don't know is that instead of late night feedings and diaper changes, you are left with late night tears and wonderings of what should have been.  Instead of skinned knees and sore throats, you deal with broken hearts and empty spaces.  Instead of the overflowing nursery, a woman who loses her child is left with a empty nursery, empty arms, and a missing piece that can ever be fully filled. 

Women who have lose their babies during pregnancy or shortly after have done the most difficult thing a mother can do for her child; grieved their loss.  We work tirelessly to protect and promote their memory.  We want to talk about our babies until there is no person left on this earth who doesn't know how wonderful they were. 

We are mothers, in every sense of the word.  Or duties towards our children may have changed, but we will forever be mothers.  Some of us will go on to bring other babies into this world, some of us will not.  Either way, we will forever hold the memory of each tiny precious life that was lost in our hearts.  We will forever speak their names, tell their stories, and share their memory. 

We will forever be their mothers.

I wish peace for all of us on this International Bereaved Mothers Day.  I wish peace for all of us on traditional Mothers Day.  We deserve, as much as anyone else, to be celebrated, honored, and cherished on both days. 

We are all, incredible, real, and amazing Mothers.
 
The Big Ones 05/01/2012
 
There are moments in life that you never want to forget.  That you want to seal up in your memory forever.  Events that happen that change the course of your life, often for the better, but monumental changes nonetheless. 

Graduation.

Your first real job.

Meeting the man/woman of your dreams. 

Getting engaged.

Getting married.

Having children.

Countless other things along the way that make this often so very painful life worth living. 

I have the unique fortune of losing all of my parents in rather odd circumstances.  This makes life complicated at times.

"What song are you using for your daddy daughter dance?
"Did your mom cry when you told her he proposed?"
"Did you have fun dress shopping with your mom?"

These are all questions that I've fielded over the past few months.  There are no easy answers.  Either I admit the truth; my parents are gone, and deal with the uncomfortable silence that generally follows.  Or I make up some story and feel bad about it afterwards. 

When baby loss enters the picture it becomes even more complicated. 

"Ohhhhhh you're getting married...will you begin having children afterwards?!"
"Aren't you glad you waited until you were married to start your family?"

Also things I've heard over the past few months.  Mostly from probably well meaning strangers, but sometimes from people who know my situation quite well.  I really don't understand. 

There are these big moments in life that you just naturally want certain people involved in.  I am having a difficult time coming to terms with all that isn't here during this season of my life.

(Before anyone launches into the "be happy with what you have" speech, rest assured, I am happy.  I love the people in my life.  I know I am lucky and I am grateful.  But there are pieces missing.  And those pieces deserve to be recognized, talked about, and grieved.  Missing one does not discount the other.)

This is quite an interesting season.  One filled with so much hope, excitement, and promise.  But also so much sadness.  Pain.  Grief.  Confusion. 

Life really is quite the journey, isn't it?

 
 
Here is the link!

Please go check this out.  We have some great items and this will help us expand and develop our programs to better serve the baby loss community.  Please feel free to share with friends and family! 
 
Big as the Sun 04/07/2012
 
''As I gaze at these stars in the cold black sky.
You could be just a speck to the universal eye.
But if you look into my heart, you're as big as the sun.
How can we have finished when we've only just begun.''
 
 
I have participated in this project several times.   And who knows, I may do it several times over the next few days. 

Right Where I am Project

Its almost been a year.  Where has the time even gone? 

I feel like right where I am right now is a very creepy place.  I feel disillusioned.  Discontent.  Like a piece is missing, and I'm not even sure how to find it.  I thought I had the answer, but it turns out the "answer" just leads to more questions. 

I feel overwhelming anxiety again. 

Will anyone other than me remember? 
Does he matter to anyone else?
Am I making too big a deal out of this?
How the hell will I get through Easter?
Why am I holding a stuffed bear instead of a baby?

I'm sad.  Obviously.  Understandably. 

Its the sadness that comes with finality.  When you come full circle on one year, its pretty hard to deny that this is the new reality.  I'm really not a mommy to anyone on this earth.  I really have experienced now several losses.  I really do have ashes instead of a baby.  I really will never get to see that baby grow up, learn, discover, thrive. 

Its all very real.  And final. 

This seems to be one of those dips that you get when you are on this crazy grief baby loss roller coaster.  I have to keep reminding myself that this is all normal, its not forever, and that I will make it through it. 

Easier said than done.  Breathing is quite important. 

Where I am 11 months and 27 days later is messy.  Confusing.  Not at all uplifting.  Anxious.  Sort of depressed.  Sad. 


 
 
We are currently looking for new board members! We need active, involved, passionate, and dedicated people to join our team! As Baby Loss Moms Found grows and moves forward, we need to have a solid board of directors and advisory board in place to enable us to create the most effective outreach programs, retreats, and support for families experiencing baby loss. Please reply here and send me an email at nikki@babylossmomsfound.com for a short questionnaire!
 
1st Birthday 03/19/2012
 
April 8, 2011: The day we found out his heart had stopped.
April 10, 2011: The day we said hello and goodbye all at once.

April 8, 2012: Easter Sunday
April 10, 2012: A party of sorts.

A party?  I know, sounds strange.  But as those of you who know me well, if my son had to die, his short life is going to have meaning.  And be celebrated.  So I have a request.

On April 10, 2012...light a candle.  Eat a slice of cake.  Release a balloon.  Plant a flower.  Donate to BLMF or March of Dimes.  Get a cupcake.  Have a scoop of ice cream.  Its his first birthday (albiet in heaven) and I intend to honor the little boy who inspired this whole thing. 

Take a picture of your celebration and email it to me at nikki@babylossmomsfound.com  I'll be blogging and giving credit to those who honor my sweet little boy.  He inspired me to become a better me.  To dream up this crazy idea of an organization.  And to love J a little more. 

Those we love are never really lost to us - we feel them in so many special ways-
through friends they always cared about and dreams they left behind, in beauty that they added to our days... in words of wisdom we still carry with us and memories that never will be gone... Those we love are never really lost to us - For everywhere their special love lives on.
 
 
The most odd thing happened to me last night:

I was turned down from a nanny job because they had found my blog doing an internet search and did not feel comfortable having someone who had lost a baby care for their infant. 

Wait?  What?!

I was pretty taken aback by this.  Last time I checked, my experience has done nothing but make me cherish life even more.  Most people think babies are common place.  Babies come along every day and there is nothing special about them.  Its ordinary. 

I know better.  I know how fragile life truly is.  I know that they are miracles and that the lengths that some people have to go through to bring a baby home makes them special.  I know that each new life is extraordinary and had to battle great odds to be here in the first place.  1 in 4 women miscarry.  Thats 25%.  Its quite a task to bring a baby home.  I will never take that for granted again. 

I believe my experience makes me stronger.  It makes me a better nanny.  A better person.  More understanding, gentle, and caring.  More flexible; I don't expect anything to happen anymore.  I expect the unexpected.  I expect to be required to alter my plans. 

In the end, its their loss.  I truly hope the person they settle with has as much caring, kindness, and compassion that I do.  I hope they are able to see that baby for the gift that it is.  I hope they realize the importance of loving and protecting that baby with every fiber of their being because in a flash it can all be gone. 

Some people say I shouldn't be so open about my experience because it leads to judgement like this.  But I believe that things like this happen all the time and its time we speak about them.  If it wasn't my experience, it could have been the color of my skin, my age, or any number of things people feel it is acceptable to judge another human being by. 

In the end, its their loss.  And I'll find a family I would be proud to work for and would be proud to employ me.  I am a woman navigating life without her baby, and that makes me a better caregiver in the end.
 
 
I am currently working on starting to develop the hospital volunteer program that we hope to pilot. Our dream is to have a baby loss mom further in her journey, available at the local hospitals to meet with other women (who request such a service) who are going through loss. I think so many times they just send in a grief counselor who doesn't quite "understand" because they haven't been through this unique type of loss.

If this was offered to you, would you have used it? What would have been most helpful to hear?